Ugh, I hate it when after watching TV with mom I am tired so I come down and actually go right to bed (instead of doing all my computer stuff for like half and hour before sleeping) but then can not get to sleep for the life of me. I was exhausted at 10:30 but here it is 2am and I am wide awake :S So I figured why not put up a post. Something is bugging me but not really important but since I am bored and can't sleep I will post what has been doing on.
Today I woke up and had planned on going to a meeting at K school (just so the resource teacher could talk to my dad about what is going on with K) but my lower back just felt all kinked up and it hurt to take a deep breath. Took some advil and went back to sleep instead of getting up. Mom and dad got home around 11 and asked if I wanted to go into town but I still wasnt feeling all that great so stayed home. I got up around 1:30 (that is actually early for me sadly) and messed around on the computer before going upstairs. We have a raised-ranch style house so we have the basement and the upstairs with our front door being on a landing between floors. So we have two half-flights of stairs. I got to the landing and honestly wasn't sure I was going to make it all the way up. My legs felt so tired and weak! I made it up and while getting a glass of chocolate milk (for some reason even though I am basically lactose intolerant I can tolerate chocolate milk, we think it's the sugars. I need to have dairy daily for the osteopenia) and lost my balance and had to grab onto the counter to stop from falling. Back downstairs I went. When I got called up for supper I took all my 'night things' (glasses, a book etc to use while watching TV or before) and seriously wondered if I would actually make it up. I had to go right over to my chair and sit down as my legs felt so weak (I usually help mom set the table and get all of our vitamins doled out). All evening my legs just felt so tired and the few times I got up I seemed unsteady on my feet. Came downstairs and it just felt like my body was exhausted and that was why I tried to go to bed early but my mind wasn't tired. I am still having lower back pain and pain in my one hip and my legs are still feeling shakey and weak. Will have to see how it goes tomorrow.
Tomorrow will be pretty good. K goes for grading tomorrow night to get his blue belt in karate. He has been stuck at his purple advanced belt for quite a long time and we were getting annoyed as he was seeming to fall through the cracks but he is back at it and hopefully can get back to getting his belts in a more timely manner (he was getting very frustrated being on that belt so long!). He started last february and this will be his 9th belt (he has got his white, white advanced, yellow, yellow advanced, orange, orange advanced, purple and purple advanced). After this he just needs to get his blue, blue advanced, green, green advanced, 3rd degree brown, 2nd degree brown and 1st degree brown and then goes for his junior blackbelt! We are so proud of him and he really excels in this sport and has gained so much confidence from it. It's an amazing dojo and the sensei and other instructers are really good with kids and the one teacher, Mr. R, has a learning disabled son whom was not supposed to live an independent life but he put him in karate and the boy is holding down a job and his own appartment. So Mr. R has been really good for K and K just loves him, well he likes all his teachers but Mr. R is really special. Sensei R is also really good and sees K as his little protegie and envisions him going straight through to black belt with not too many issues. Once K gets to his blue advanced belt he gets a new weapon which should be good, it will be the first real weapon the 'tonfa' (click for a picture of one). He has done small sticks, batons and staff but this will be the first actual weapon, after that he goes to nunchaku!!
Well I have babbled on here about basically nothing so should probably go and try to get some sleep, or at least find something to do!
Thursday, March 31, 2011
Tuesday, March 29, 2011
Difficult, but important, conversation
I had mentioned the other day that it was just my nephew and I at home this weekend as my parents were gone for the weekend. He was sleeping down in my room (well really a small apartment thanks to my parents) and on saturday night I turned to take my pills and turn back around to K asking "Are you taking your pills?" Then the seconds seemed to tick by ever so slowly when I didnt know what to say or where this conversation was going to be going and how I wanted the conversation to go. Quickly in my mind I realized that this is something that K actually sees day to day (my health issues) and he already knows that I need medications so I can feel better. However, he is only 9 years old and has had enough stress in his young life already and I did not want to scare him or even think for one minute that I won't be there for him in the furture! "Yes K, I am taking my medications. Why?"
I guess I should quickly note that K knows that I am not perfectly healthy. He knows I take medications to help me, he knows I get headaches often and he sometimes has to be quiet so I can sleep them off. He knows I can't walk too much and he also will help me if we are out shopping by getting things off low shelves for me. He knows there are times when I can't play with him and that there are days that we just cuddle up on the couch and watch movies all day. He is one amazing kid and makes my life so much richer.
He says he is just wondering, and after a slight hesitation he asks what they are for. Now I would never show him my medications. Not becasue I don't want him to get into them as he has been told from day one that you never touch anything that might look like medications unless Nanny, Poppa or Nini (that is what he calls me, he couldn't say Auntie so he said nee-nee and we spell it Nini) is giving them to you. I just didn't want him to as they look like there are so many of them because there are a few medications that I have to take two pills to make the dose I need and there are also vitamins in there. I told him that I take something for my headaches, one for my stomach, one for my heart and one for my sweating and he interupted and said "and something for your knee" and I clarified and said that I take something for pain, which right now is mainly my knee. He thought for a moment and then says "Nini, your body really sucks".
After another breif pause he asks "Are you going to die from it?" which was like a knife through my heart. I told him that no, there was nothing wrong with me that was going to make me die. "Then why do you take medicine for your heart?". I tell him that the medicine for my heart is because my heart goes really fast and will make me tired a lot because of it so the pills help slow my heart so I don't get as tired after doing things. At this point I figure it's time to tell him a bit more about EDS and what it means. I go down to right beside him on the floor and grab one of my EDS books (my laptop was upstairs and I didn't want to make him wait). I showed him all the pictures that we can do and he tried them as well and could do most of them himself. Then I tell him that kids should be able to do these things, adults shouldnt and that is what causes problems. We talk some more about how I get so tired and in pain and that I need more sleep than most people and stuff. Then I tell him that this is why I won't be having any kids, because I don't want to pass this on to anyone else becaue that just wouldn't be fair to the kid. Then I tell him that is why our home situation is perfect, I get to see and help him grow up as I won't be able to do that with my own kid. A few more basic questions and then something on the TV catches his eye and the conversation is over.
It probably only lasted around 10 to 15 minutes but it felt so much longer. The next day he told me that if I was still tired I could have a nap so we could play that afternoon, which I thanked him for and one more time I tell him that he is such a good kid and really helps me out by helping to do the little things that need to be done. That afternoon we curled up on the couch and watched a movie.
I guess I should quickly note that K knows that I am not perfectly healthy. He knows I take medications to help me, he knows I get headaches often and he sometimes has to be quiet so I can sleep them off. He knows I can't walk too much and he also will help me if we are out shopping by getting things off low shelves for me. He knows there are times when I can't play with him and that there are days that we just cuddle up on the couch and watch movies all day. He is one amazing kid and makes my life so much richer.
He says he is just wondering, and after a slight hesitation he asks what they are for. Now I would never show him my medications. Not becasue I don't want him to get into them as he has been told from day one that you never touch anything that might look like medications unless Nanny, Poppa or Nini (that is what he calls me, he couldn't say Auntie so he said nee-nee and we spell it Nini) is giving them to you. I just didn't want him to as they look like there are so many of them because there are a few medications that I have to take two pills to make the dose I need and there are also vitamins in there. I told him that I take something for my headaches, one for my stomach, one for my heart and one for my sweating and he interupted and said "and something for your knee" and I clarified and said that I take something for pain, which right now is mainly my knee. He thought for a moment and then says "Nini, your body really sucks".
After another breif pause he asks "Are you going to die from it?" which was like a knife through my heart. I told him that no, there was nothing wrong with me that was going to make me die. "Then why do you take medicine for your heart?". I tell him that the medicine for my heart is because my heart goes really fast and will make me tired a lot because of it so the pills help slow my heart so I don't get as tired after doing things. At this point I figure it's time to tell him a bit more about EDS and what it means. I go down to right beside him on the floor and grab one of my EDS books (my laptop was upstairs and I didn't want to make him wait). I showed him all the pictures that we can do and he tried them as well and could do most of them himself. Then I tell him that kids should be able to do these things, adults shouldnt and that is what causes problems. We talk some more about how I get so tired and in pain and that I need more sleep than most people and stuff. Then I tell him that this is why I won't be having any kids, because I don't want to pass this on to anyone else becaue that just wouldn't be fair to the kid. Then I tell him that is why our home situation is perfect, I get to see and help him grow up as I won't be able to do that with my own kid. A few more basic questions and then something on the TV catches his eye and the conversation is over.
It probably only lasted around 10 to 15 minutes but it felt so much longer. The next day he told me that if I was still tired I could have a nap so we could play that afternoon, which I thanked him for and one more time I tell him that he is such a good kid and really helps me out by helping to do the little things that need to be done. That afternoon we curled up on the couch and watched a movie.
Friday, March 25, 2011
Weekend with My Munchkin (K)
Most people know by now that my 9 year old nephew lives with my parents and I. My parents have had full custody of him since he was about 15 months old. We definitly have a unique situation going on but it is perfect for us :D My parents decided to go away to a friend's house for the weekend and so it's just K and me (and the dogs) all weekend. I sleep on a waterbed and have all my life, my parents (and K) all have normal beds. I don't do well on normal beds and don't sleep well, and I do not to well on little sleep. So my parents took the matress of K's bed (one of those new foam types that are pretty light) and brought it down to my room to put on the floor for him to sleep so I could still sleep in my waterbed.
I picked him up from school and we came home and he played on the Wii for awhile and then we left around 4:30. We first went in and went to the theatre to get our tickets in advance for 'Diary of a Wimpy Kid: Roderick Rules' and then went to Pizza Pizza to order our supper before heading over to Walmart. They had a pile of Bakugan stuff on sale thursday when we went in and mom got about $80 worth of stuff for only $12.50. Thankfully we had got all the main pieces (they had some nice tin boxes with special ones that would work great for storage on for $2.50, there were three colours so we got all three) as they were very picked over and nothing new today. He really wanted some Halo action figures and, as it was his money, I agreed he could get a two pack of the action figures but made sure he knew that he would not be playing the game for a very long time! We then went back over to Pizza Pizza for supper, and after a breif mishap we were able to eat and get to the show in good time. I got a small popcorn and a large pop (I need lots of liquid now a days) and got K a large slushie then we went in and watched the movie. They are actually pretty good with good story lines that aren't to cheesy or 'pushy' in morals. After that we went back to walmart as I wanted to get something (in the end they didn't even have it!) but while looking at games (checking out the price for the Wii game we rented) I found the game "Beastly" (after the book and movie) for $19 so picked it up.
We had a nice 'surprise' when we got home. Tazzy (our little 15lb Jug - Jack Russel and Pug) had got past the gate and into my room. He also managed to dig / rip a good 6 inch slash in K's sheet and made it right through the foam mastress topper (thankfully just one of those egg shell ones, not memory foam!) and there was foam all over the place. I will try to put up a picture of it later (just quickly typing this up while K winds down from the day before we go to bed). So we had a great deal of cleaning up to do and then having to remake the bed. Now we are all holed up in my room and all four of us will spend the night here - m, K, Tazzy and my dog Shaggy (around 35lb Tibetan Terrier and Lhasa Apso mix, and my suck and first dog that is actually mine and not the familes - even though he is treated and acts like a family dog). Just letting K watch some Star Wars Clone Wars on the TV as he is curled all up in bed with both dogs on there with him while I finish this then I will go to bed and read for a while. My knee and mouth are hurting pretty bad now (knee - all the hurried walking we did, the driving and sitting in the movie theatre; mouth - eating spicier foods like pizza and attempting to eat popcorn) so I have taken some pain killers and just waiting for them to kick in. Hoping that K doesnt wake up too early tomorrow morning!!!!
I picked him up from school and we came home and he played on the Wii for awhile and then we left around 4:30. We first went in and went to the theatre to get our tickets in advance for 'Diary of a Wimpy Kid: Roderick Rules' and then went to Pizza Pizza to order our supper before heading over to Walmart. They had a pile of Bakugan stuff on sale thursday when we went in and mom got about $80 worth of stuff for only $12.50. Thankfully we had got all the main pieces (they had some nice tin boxes with special ones that would work great for storage on for $2.50, there were three colours so we got all three) as they were very picked over and nothing new today. He really wanted some Halo action figures and, as it was his money, I agreed he could get a two pack of the action figures but made sure he knew that he would not be playing the game for a very long time! We then went back over to Pizza Pizza for supper, and after a breif mishap we were able to eat and get to the show in good time. I got a small popcorn and a large pop (I need lots of liquid now a days) and got K a large slushie then we went in and watched the movie. They are actually pretty good with good story lines that aren't to cheesy or 'pushy' in morals. After that we went back to walmart as I wanted to get something (in the end they didn't even have it!) but while looking at games (checking out the price for the Wii game we rented) I found the game "Beastly" (after the book and movie) for $19 so picked it up.
We had a nice 'surprise' when we got home. Tazzy (our little 15lb Jug - Jack Russel and Pug) had got past the gate and into my room. He also managed to dig / rip a good 6 inch slash in K's sheet and made it right through the foam mastress topper (thankfully just one of those egg shell ones, not memory foam!) and there was foam all over the place. I will try to put up a picture of it later (just quickly typing this up while K winds down from the day before we go to bed). So we had a great deal of cleaning up to do and then having to remake the bed. Now we are all holed up in my room and all four of us will spend the night here - m, K, Tazzy and my dog Shaggy (around 35lb Tibetan Terrier and Lhasa Apso mix, and my suck and first dog that is actually mine and not the familes - even though he is treated and acts like a family dog). Just letting K watch some Star Wars Clone Wars on the TV as he is curled all up in bed with both dogs on there with him while I finish this then I will go to bed and read for a while. My knee and mouth are hurting pretty bad now (knee - all the hurried walking we did, the driving and sitting in the movie theatre; mouth - eating spicier foods like pizza and attempting to eat popcorn) so I have taken some pain killers and just waiting for them to kick in. Hoping that K doesnt wake up too early tomorrow morning!!!!
Thursday, March 24, 2011
Rheumatologist Appointment
The last appointment of the week finally! First thing he says as he watches me walk to the chair is 'You are walking horribly on that left foot', had never seen someone who turned over so much before, especially in shoes! I gave him the report of the CT scan that I had done and he mentioned that he wishes he had got it sooner but when I told him I only got it myself on tuesday he thanked me for bringing him a copy. He asked what the clinic was thinking and I told him that I had to go see Dr. L to see if I was a surgical candidate or not. He said he hopes that they can fix it and that it isn't something we look back on in 20 years regretting. He then got out the bloodwork results and it's definitly good news! Even though I have early signs of either RA or Lupus, all the bloodwork has come back with negative values :) It is things we will have to keep an eye on, especially as I am showing early signs with my hands and 'bumps' and sjorgrins types of issues. He then asks me if I have tried another medication and when I said no he said that was good as he was looking at it for the future. Imagine that, a doctor that not only has a plan, but also a back up plan for when the first plan doesn't work anymore! Everything was good so I go back to him in two months, just shortly after I see Dr. L.
Mom and I than headed over to Walmart where I bought two CD's (Adam Lambert's Live CD and Pink's greatest hits), two DVD's (Yogi Bear and The Day After Tomorrow) and yet another book (Diane Chamberlain's The Lies We Told), then we went to Arby's for lunch and headed home. I crawled into bed to have a nap before K got home from school. I got up when he got home to go and help him with his homework than I took him into Karate, just the two of us. He did well, got his form for grading next week which will put him at a Blue belt finally (he got held up on his purple advance because of the instructors and him getting messed up memorizing his weapon, staff, move - short term memory is one of his issues with his CAPD). After that we headed over to Blockbuster for him to pick out a game for the weekend. My parents are going away for the weekend on their own for once so K is staying home with me. I didn't want to leave Blockbuster til friday as I knew the game he would want (even though he didnt think he wanted it until I showed it to him lol) so thought it might be out of stock. We got the game he wanted (Star Wars 3 Lego - Clone Wars) and picked up two more DVD's (The fourth Shrek and Alpha & Omega) on sale so we have those as well.
Got home and we watched American Idol (not sure if I agree with the save but just glad it wasn't Stefano going home) and mom and I watched an episode of Buffy and that was about my day :)
Mom and I than headed over to Walmart where I bought two CD's (Adam Lambert's Live CD and Pink's greatest hits), two DVD's (Yogi Bear and The Day After Tomorrow) and yet another book (Diane Chamberlain's The Lies We Told), then we went to Arby's for lunch and headed home. I crawled into bed to have a nap before K got home from school. I got up when he got home to go and help him with his homework than I took him into Karate, just the two of us. He did well, got his form for grading next week which will put him at a Blue belt finally (he got held up on his purple advance because of the instructors and him getting messed up memorizing his weapon, staff, move - short term memory is one of his issues with his CAPD). After that we headed over to Blockbuster for him to pick out a game for the weekend. My parents are going away for the weekend on their own for once so K is staying home with me. I didn't want to leave Blockbuster til friday as I knew the game he would want (even though he didnt think he wanted it until I showed it to him lol) so thought it might be out of stock. We got the game he wanted (Star Wars 3 Lego - Clone Wars) and picked up two more DVD's (The fourth Shrek and Alpha & Omega) on sale so we have those as well.
Got home and we watched American Idol (not sure if I agree with the save but just glad it wasn't Stefano going home) and mom and I watched an episode of Buffy and that was about my day :)
Wednesday, March 23, 2011
Get to know me 'quiz'
Well since I am wide awake and not tired (and trying to stay occupied so I don't go googling more autoimmune disorders before my appointment tomorrow) and I saw this somewhere else I figured why not fill it out so you can all have strange and weird facts about me :D
A. Age: 29
B. Bed size: I believe it is called a 'super single' it's an old waterbed
C. Chore you dislike: don't do many anymore (tend to break things are make things worse) but I hated loading the dishwasher - especially when someone will put some water in the sink to let something soak then others pile more dishes on top of it and you have to reach into the water, totally disgusting!
D. Dogs: Yup, love them and couldn't live without them. I have my dog, Shaggy, who is a lhaso-apso and tibetan terrier mix and is 5.5 years old and we have a family dog, Tazzy, who is a Jug (Jack Russell and Pug mix) who is 1.5 years old. I have had two other wonderful dogs in my life and am thankfully for all the love they gave and was very hard to lose them.
E. Essential start to your day: Take my morning medications then go and check out my email and stuff online
F. Favorite color: Blue, and some purples (Ironically my high school's colours were blue and white and my universities were purple and gold)
G. Gold or silver: Silver
H. Height: 5'3 at the start of the day and 5'2 at the end lol
I. Instruments you play(ed): Always too klutzy and non-artistic to play any music. Guitar would have been fun though
J. Job title: Officially Disabled, would love to do webpages in my free time if the opportunity presents itself
K. Kids: That's a tricky one. Anyone who knows me is aware that I think of my nephew as my own child. I live with my parents and my parents have full custody of him so I get to help out in the raising of him and watch this amazing young man grow into an even amazinger adult. As far as having kids, it will not happen. When I was diagnosed with EDS and found out it was genetic I made my mind up then and there (literally in the genetisists office) that I would not risk passing this on to a child. They would have a 50-50 chance of getting it and not to mention that it would probably adversly affect my health as well.
L. Live: Southern Ontario, Canada
M. Mom’s name: Linda - my middle name is from her, Lyn
N. Nicknames: Nini (K), Muff (dad), Stace (everyone) but no real nicknames, my friends tried out many in high school but none of them never really stuck
O. Overnight hospital stays: a few as a child - pnemonia, concussion, tonsilectomy, tubes in ears, infections and 2 months in the NICU when I was born. Thankfully none as an adult, despite all the surgeries
P. Pet peeves: People who do not respect others, people that use others for their own gain, people who have their priorites all messed up, liars and fakes. All really back to the respect issue
Q. Quote from a movie: Totally drawing a blank!!
R. Righty or lefty: Right
S. Siblings: Another tough question... I prefer to think of myself as an only child, but as I have a nephew I obviously have to have a sibling, legally at least...
T. Time you wake up: Whenever my body decides it has had enough sleep, usually noonish :S
U. Underwear: Strange question! Of course I wear underwear
V. Vegetables you don’t like: most vegetables! I like some raw veggies with dip, or corn on the cob or decobbed (as long as it's not creamed!), I am more of a fruit person
W.What makes you run late: Getting ready taking more time than normal becaue of some strange health quirk (dislocation, sweats, fatigue etc) but I am generally on time, if not early
X. X-rays you’ve had: LOL not even going to attempt this one! I have had three sets done so far this year!
Y. Yummy food you make: Shepards Pie, a really good taco dip
Z. Zoo animal favorites: If there is an aquatic section then that is my favourite part, otherwise it would have to by all the different types of monkeys. The lions at the last zoo we went to were fascinating to watch as well, just not as entertaining as the monkeys
A. Age: 29
B. Bed size: I believe it is called a 'super single' it's an old waterbed
C. Chore you dislike: don't do many anymore (tend to break things are make things worse) but I hated loading the dishwasher - especially when someone will put some water in the sink to let something soak then others pile more dishes on top of it and you have to reach into the water, totally disgusting!
D. Dogs: Yup, love them and couldn't live without them. I have my dog, Shaggy, who is a lhaso-apso and tibetan terrier mix and is 5.5 years old and we have a family dog, Tazzy, who is a Jug (Jack Russell and Pug mix) who is 1.5 years old. I have had two other wonderful dogs in my life and am thankfully for all the love they gave and was very hard to lose them.
E. Essential start to your day: Take my morning medications then go and check out my email and stuff online
F. Favorite color: Blue, and some purples (Ironically my high school's colours were blue and white and my universities were purple and gold)
G. Gold or silver: Silver
H. Height: 5'3 at the start of the day and 5'2 at the end lol
I. Instruments you play(ed): Always too klutzy and non-artistic to play any music. Guitar would have been fun though
J. Job title: Officially Disabled, would love to do webpages in my free time if the opportunity presents itself
K. Kids: That's a tricky one. Anyone who knows me is aware that I think of my nephew as my own child. I live with my parents and my parents have full custody of him so I get to help out in the raising of him and watch this amazing young man grow into an even amazinger adult. As far as having kids, it will not happen. When I was diagnosed with EDS and found out it was genetic I made my mind up then and there (literally in the genetisists office) that I would not risk passing this on to a child. They would have a 50-50 chance of getting it and not to mention that it would probably adversly affect my health as well.
L. Live: Southern Ontario, Canada
M. Mom’s name: Linda - my middle name is from her, Lyn
N. Nicknames: Nini (K), Muff (dad), Stace (everyone) but no real nicknames, my friends tried out many in high school but none of them never really stuck
O. Overnight hospital stays: a few as a child - pnemonia, concussion, tonsilectomy, tubes in ears, infections and 2 months in the NICU when I was born. Thankfully none as an adult, despite all the surgeries
P. Pet peeves: People who do not respect others, people that use others for their own gain, people who have their priorites all messed up, liars and fakes. All really back to the respect issue
Q. Quote from a movie: Totally drawing a blank!!
R. Righty or lefty: Right
S. Siblings: Another tough question... I prefer to think of myself as an only child, but as I have a nephew I obviously have to have a sibling, legally at least...
T. Time you wake up: Whenever my body decides it has had enough sleep, usually noonish :S
U. Underwear: Strange question! Of course I wear underwear
V. Vegetables you don’t like: most vegetables! I like some raw veggies with dip, or corn on the cob or decobbed (as long as it's not creamed!), I am more of a fruit person
W.What makes you run late: Getting ready taking more time than normal becaue of some strange health quirk (dislocation, sweats, fatigue etc) but I am generally on time, if not early
X. X-rays you’ve had: LOL not even going to attempt this one! I have had three sets done so far this year!
Y. Yummy food you make: Shepards Pie, a really good taco dip
Z. Zoo animal favorites: If there is an aquatic section then that is my favourite part, otherwise it would have to by all the different types of monkeys. The lions at the last zoo we went to were fascinating to watch as well, just not as entertaining as the monkeys
Dentist Appointment
Well I went in to the dentist today to get things looked at. Thankfully I 'just' have a massive canker sore on the inside of my cheek / gum line going on. He said it's pretty nasty looking and probbaly more painfull than anything he could ever do lol. He suspects I probably had something viral going on and it found a place to appear in my mouth after the surgery. Nothing that can be done for it, just grin and bear it basically. He did check out things and made sure the teeth near it were okay and could have pressure and checked a few of the fillings he did to make sure they were okay. He said that they usually last about 10 days, but for me we would give it two weeks lol (I didnt tell him it's already been 7 days!). He told me to just take my normal pain killers and said that the ear and jaw pain were normal as it is pretty large and aggrevated and then made sure that I had pain killers. For me the most telling part of the entire appointment........ He didn't tell me to just go and get some orajel to put on it to numb it!! I am sure this is the suggestion given to most people with mouth pain but he didn't go there, and since orajel is a topical anesthetic, it wouldn't work for me anyways which he probably figured out so didn't mention it! (how do you like that run-on and circular sentance lol).
Mom and I got thinking and we have figured it out we think. I felt fine going into surgery but after was just abnormally tired and had a horrendous cough and just acheyness. Well a few days later K comes down with the same cough and feeling the same as I had. So we figure I had the beginnings of a cold going into surgery so that virus just found a place in and manifested itself as a canker sore. That's our theroy anyways and we like it ;) We did go to the drug store and found something for canker sores that doesnt have any *caine's in it (those are topicals, they mostly all end in 'caine') but works by putting a film over the sore. As this sore gets scratched and irritated every time I even open my mouth because of the position it is in, I hope it works! Was waiting to get supper over and down with before trying it.
I have to admit, last night my imagination got away from me and I started to think of all the bad things it could have been, infection being the most basic one. I got worried it was from my osteoporosis medication, thought it was an absess, something that would have to be worked on (like lanced or something) and on and on. So I did feel kinda stupid going to the dentist for a canker sore but he did tell me that it was good that I got it looked at as the problems I am having could easily have been a bad infection and I was right to come and see him.
Mom and I got thinking and we have figured it out we think. I felt fine going into surgery but after was just abnormally tired and had a horrendous cough and just acheyness. Well a few days later K comes down with the same cough and feeling the same as I had. So we figure I had the beginnings of a cold going into surgery so that virus just found a place in and manifested itself as a canker sore. That's our theroy anyways and we like it ;) We did go to the drug store and found something for canker sores that doesnt have any *caine's in it (those are topicals, they mostly all end in 'caine') but works by putting a film over the sore. As this sore gets scratched and irritated every time I even open my mouth because of the position it is in, I hope it works! Was waiting to get supper over and down with before trying it.
I have to admit, last night my imagination got away from me and I started to think of all the bad things it could have been, infection being the most basic one. I got worried it was from my osteoporosis medication, thought it was an absess, something that would have to be worked on (like lanced or something) and on and on. So I did feel kinda stupid going to the dentist for a canker sore but he did tell me that it was good that I got it looked at as the problems I am having could easily have been a bad infection and I was right to come and see him.
Tuesday, March 22, 2011
OS Appointment
It was weird going to the clinic today to have my follow-up after the CT scan. Exactly 9 years earlier I had been there having my second knee operation so it was just kinda strange. Not too much to report though. She showed us the report (and gave me a copy to take on thursday to my rheumy) and the scans. Weird thing is that if you just had the scans and nothing else, you would think I was being seen for my left knee. On the scans it shows that when my quad's were constricted my right knee subluxed laterally 10% while my left knee subluxed laterally 30%. Apparently I dont really have a 'grove' for my knee cap to sit in, it's almost like a flat surface and that plus the ligament laxity plus the hypermobility plus 'me' is what causes the problem. Dad kind of joked at one point that it was too bad we didn't have a good knee to compare it to and she said that no, neither of my knees were good. So I asked if in reality my left knee was a lot worse off than my right knee she kinda just said well we are going on symptoms for now. Becasue I go see the top Doctor in two months (which she was shocked about as it usually takes around a year to get in to him) she said she will just leave things and it will be up to Dr. L to decide if I am a surgical candidate and for which procedure.
That's about it, nothing really happened except I have a copy of the report to take to my rheumy on thursday. It's going to be a busy week! Had my OS appt today, go to the dentist tomorrow for a very probably nasty infection going on, rheumy on thursday and then my parents are going away for the weekend leaving K with me so that means not much sleep! At least I have the weekend planned (basically) with things for us to do :)
That's about it, nothing really happened except I have a copy of the report to take to my rheumy on thursday. It's going to be a busy week! Had my OS appt today, go to the dentist tomorrow for a very probably nasty infection going on, rheumy on thursday and then my parents are going away for the weekend leaving K with me so that means not much sleep! At least I have the weekend planned (basically) with things for us to do :)
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