Journey to Becoming a Zebra - The Facts

This list covers everything that has gone on since the day I got my Ehlers Danlos Syndrome diagnosed.  I am probably missing a bunch of things but these are what I have been able to remember just by memory.

Doctors:

• 6 Orthopedic Surgeons
• 5 Physiotherapists
• 3 Rheumatologists
• 3 Dentists (2 were Oral Surgeons)
• 2 Pain Clinics
• 2 Cardiologists (and one is also my internist and gastroenterologist)
• 2 Neurologists
• 1 Allergist
• 1 Dermatologist
• 1 Podiatrist
• 1 Geneticist

Procedures:

• 8 Echocardigrams
• 8 MRI's (that I have remembered)
• 5 Cortisone Injections (1 right knee, 4 right shoulder)
• 4 Holter Monitors
• 4 Dental Surgeries (1 widsom tooth extraction, 1 molar extraction & 2 fillings)
• 3 Bone Scans
• 3 Dexa Scans
• 1 CT Scan (right knee)
• 1 Joint Ultrasounds (right knee)
• Numerous - > X-Rays, EKG's and Bloodwork

Medications Tried:

• 8 Breakthrough Pain
• 5 NSAIDS
• 4 Off Label Uses
• 3 Long Acting
• 3 Anti-Depressants
• 3 Beta Blockers
• 3 Topical Pain Killers
• 2 Migraine Prevention
• 1 Stomach
• 1 Osteoporosis
• Numerous -> Vitamins and OTC (Over The Counter) Medications
• Other non- EDS related medications (anti-biotics etc)

Joint Problems:

• Dislocations - Knees (both), Wrists (both), Thumbs (both), Elbows (right) & Shoulder (right)
• Tendonitis - Ankle (left), Knees (both), Wrists (both) & Shoulders (right)
• Bursitits - Ankle (left) & Shoulder (right)
• Osteoarthritis - Knee (right) & Shoulder (right) (confirmed)
• Carpel Tunnel - Both Wrists
• Degenerations - Shoulder, Neck & Back
• Bone Spur - Neck
• Disc Herniation - C5-ish
• Stenosis - Cervical Region
• Reverse Lordis - Lumbar Region
• Ganglion Cyst - Ankle (left)

Treatments:

• Physio - Ankle (left), Knees (both, pre & post-op), Wrists (both) & All Body Assesment
• Bracing - Ankle (left), Knees (right), Wrists (both) & Thumb (both)
• Ultrasound Therapy - Same as Physio
• TENS Therapy - Same as Physio
• Contrast Baths - Wrists (both) & Thumbs (both)
• Accupuncture - Knee (right)
• Accupressure
• Massage Therapy
• Hydrotherapy
• Orthotics

'New' Conditions:

• Chronic Pain
• Chronic Fatigue Syndrome
• Fibromyalgia
• Depression
• Anemia - Iron & B12
• Severe Vitamin D Deficiency
• Sinus Tachycardia / Possible Mitral Valve Prolapse
• Local Anesthetic Allergy (and they do not work)
• Sedation Does Not Take
• Tylenol & Asprine Sensativity / Latex Sensativity
• Severe Chronic Headaches
• Fallen Arches / Flat Foot
• Autonomic Dysfunction / POTS / Dysautonomia
• Osteopenia / Osteoporosis
• Probable Autoimmune Disorder
• Gastroparesis / Gastritis / GERD & Bile Reflux
• Osteoarthritis