Wow! It's been so long since I updated! Seems like so much has happened and gone on yet nothing has happened or gone on. Do you know what I mean? I have had three different doctor's appointments (and a few small doctor's office visits). I was going to include all of them in this one post but then it would be way too long so I will just link up the entries and post the appointments on the day that they happened. So here they are:
August 22nd - Appointment with my Internist / GI / Cardio
October 28th - Appointment with my GP
November 4th - Appointment with Optometrist
I promise I will update sooner rather than later and do a general update not tied to doctor appointments!
Showing posts with label blog. Show all posts
Showing posts with label blog. Show all posts
Thursday, November 7, 2013
Thursday, August 9, 2012
Summer Recap
Since I was posting my summer vacation posts on the date that they actually happened, and have posted one up-to-date post I thought it would make it slightly easier to just list the posts that I back dated. Most of these three posts were written up after I posted about my brother but I wanted to post them to the proper date. The posts are:
Concert and weekend with S
Wonderland trip with K and my cousins
Week-long Vacation with Family
Unfortunately there will be more posts about what is going on with my brother. Just wanted to make sure my summer fun posts were not lost in all this (like our real summer fun getting lost because of him).
Concert and weekend with S
Wonderland trip with K and my cousins
Week-long Vacation with Family
Unfortunately there will be more posts about what is going on with my brother. Just wanted to make sure my summer fun posts were not lost in all this (like our real summer fun getting lost because of him).
Tuesday, February 21, 2012
Avoiding disaster! (and the normal blog update)
First - I have changed my mind and decided that my 100th post is actually going to be my journey to eds-ville as I realized that since I have moved to this blog (did post before on a different blog site) I haven't really delved into anything in my past. I will soon put up links though from my followers so if you haven't replied or emailed please do so if you want your link posted. If you are a follower who has a blog, I don't feel comfortable just automatically putting up your link and would like to have your permission before I link you. I know that seems kind of odd as you can just click on a persons name, but that is how I feel more cofortable in doing things (it's the computer programmer in me lol).
Things have been pretty good around here for the most part. No big issues or anything like that which is nice for a change. Also it seems like we avoided what could have been a MAJOR problem! My brother's fiance's daughter (I guess my step-neice? call her 'J') is sick. My nephew was at their house for about 30 minutes last tuesday and also had a visitation at their place on sunday for about 4 hours. Thankfully, for some reason, J was not at home while K was there on sunday. I say thankfully because we got a frantic call sunday night saying that they had just got home from the ER with J and she was diagnosed with........ Scarlet Fever!!! Thankfully she isn't too sick and they gave her antibiotics and had her fever gone by the time they left. Apparently it is not a serious disease anymore and is in the same range as strep throat which we found out is going around our community (my family and my brother's family live in the same small town of about 7000 people, but K and J go to different schools). As we read that it can take between 12 - 72 hours for signs to start showing and since K was home from school on friday with a sore thorat and no rash or fever has appeared on K (or me!) we seem to have avoided it completely! No visits will be done though until she is completly off of all antibiotics as my immune system is so low and I can get real sick, they know that we have to take more precautions than most (like no visits here during any chicken pox outbreaks in town).
Medically I have been having a lot of problems with two of my joints. My right shoulder is not feeling stable at all and in quite a bit of pain, but nothing compared to my right hip. I can not sit or lay down in a comfortable position. Late at night when I can't sleep because of it, it is bad enough that I get tears in my eyes. I have been doing breakthrough meds a lot more regularly that normal but thankfully have a GP appointment on thursday so I can get my medications switched over as it seems I am reaching my tolerance levels (I usually try not to change long-acting and breakthrough meds at the same time but I don't think it can be helped this time). Unfortnatly, as he is just my GP and I have no rheumy or joint doctor, nothing will be done unless I can convince him to do some scans or think about cortisone shots in one (or both) areas.
I did get bloodwork taken last week which was absolutely shocking. For the first time in many many years it only took one nurse, one stick, in my left elbow (normally only hands work) and no digging! They know me there and groaned when they saw how many vials they would need (did a complete autoimmune work up, even the tests that insurance doesnt cover!, my iron, B12 and vitamin D levels - total of 6 vials!). Originally it was only going to be for the autoimmune stuff but on the day I went to the office to ask for the other three tests and since I didn't know I decided to fast that night just in case. The lady took me into the room, joking away with me and my mom and got me settled in and the vials out. Now, for those who dont know me generally I have to have a heat pack on my hand before hand, butterfly needle into a vein on my hand between my fingers, two nurses basically using gravity to get the blood out, using a syringe because changing vials tends to make the vein collapse, lots of painful digging and anywhere from 1 - 3 attempts to get the blood. She has even told me that I am to always tell her to stick to my hand and not attempt the arm because she always feels a good vein but after digging she loses it and ends up going to my hand. So, like normal she starts feeling around and checks my arm and says she feels a really big vein there. After a few words exchanged I told her she could try the arm if she felt confident in it, which she did. She took the needle, stuck it straight in and as I was waiting for the digging to start I hear a noise. I opened my eyes and see that she wasn't digging because she was changing the vial to fill up # 2!! She got all six vials done in half the time it usually takes to just get a half full syringe! With no pain (and no bruising!). We were all very very shocked at how well it worked and mom joked that we should head right to the tattoo parlor and get a bullseye on it!!
Well I have a doctor's appointment on thursday where we will be discussing a LOT of different topics so I will post this weekend with what goes on.
Things have been pretty good around here for the most part. No big issues or anything like that which is nice for a change. Also it seems like we avoided what could have been a MAJOR problem! My brother's fiance's daughter (I guess my step-neice? call her 'J') is sick. My nephew was at their house for about 30 minutes last tuesday and also had a visitation at their place on sunday for about 4 hours. Thankfully, for some reason, J was not at home while K was there on sunday. I say thankfully because we got a frantic call sunday night saying that they had just got home from the ER with J and she was diagnosed with........ Scarlet Fever!!! Thankfully she isn't too sick and they gave her antibiotics and had her fever gone by the time they left. Apparently it is not a serious disease anymore and is in the same range as strep throat which we found out is going around our community (my family and my brother's family live in the same small town of about 7000 people, but K and J go to different schools). As we read that it can take between 12 - 72 hours for signs to start showing and since K was home from school on friday with a sore thorat and no rash or fever has appeared on K (or me!) we seem to have avoided it completely! No visits will be done though until she is completly off of all antibiotics as my immune system is so low and I can get real sick, they know that we have to take more precautions than most (like no visits here during any chicken pox outbreaks in town).
Medically I have been having a lot of problems with two of my joints. My right shoulder is not feeling stable at all and in quite a bit of pain, but nothing compared to my right hip. I can not sit or lay down in a comfortable position. Late at night when I can't sleep because of it, it is bad enough that I get tears in my eyes. I have been doing breakthrough meds a lot more regularly that normal but thankfully have a GP appointment on thursday so I can get my medications switched over as it seems I am reaching my tolerance levels (I usually try not to change long-acting and breakthrough meds at the same time but I don't think it can be helped this time). Unfortnatly, as he is just my GP and I have no rheumy or joint doctor, nothing will be done unless I can convince him to do some scans or think about cortisone shots in one (or both) areas.
I did get bloodwork taken last week which was absolutely shocking. For the first time in many many years it only took one nurse, one stick, in my left elbow (normally only hands work) and no digging! They know me there and groaned when they saw how many vials they would need (did a complete autoimmune work up, even the tests that insurance doesnt cover!, my iron, B12 and vitamin D levels - total of 6 vials!). Originally it was only going to be for the autoimmune stuff but on the day I went to the office to ask for the other three tests and since I didn't know I decided to fast that night just in case. The lady took me into the room, joking away with me and my mom and got me settled in and the vials out. Now, for those who dont know me generally I have to have a heat pack on my hand before hand, butterfly needle into a vein on my hand between my fingers, two nurses basically using gravity to get the blood out, using a syringe because changing vials tends to make the vein collapse, lots of painful digging and anywhere from 1 - 3 attempts to get the blood. She has even told me that I am to always tell her to stick to my hand and not attempt the arm because she always feels a good vein but after digging she loses it and ends up going to my hand. So, like normal she starts feeling around and checks my arm and says she feels a really big vein there. After a few words exchanged I told her she could try the arm if she felt confident in it, which she did. She took the needle, stuck it straight in and as I was waiting for the digging to start I hear a noise. I opened my eyes and see that she wasn't digging because she was changing the vial to fill up # 2!! She got all six vials done in half the time it usually takes to just get a half full syringe! With no pain (and no bruising!). We were all very very shocked at how well it worked and mom joked that we should head right to the tattoo parlor and get a bullseye on it!!
Well I have a doctor's appointment on thursday where we will be discussing a LOT of different topics so I will post this weekend with what goes on.
Monday, February 6, 2012
Rough week
First off, to my two new followers, welcome to my blog and I hope I don't bore you to death lol. I don't update my blog near as often as I should and hoping to get back into blogging regulary again. Thanks to all my other followers too! I am nearing my 100th post and was wondering if each of you could either e-mail me (if you know the email) or comment and tell me how you found the blog, why you are interested in it (do you have eds? family member? just random searchig?) and most importantly the link to your blog if you have it. I haven't put links along the side bar yet because I can't find out a layout I like for it so going to create a seperate page with info of my followers if you let me. If you have EDS you know that we need to stick together throughout all that we go through.
Secondly, why I haven't posted since the scope. Thankfully my dentist appointment got cancelled (wasn't looking foward to someone working with stuff in my mouth after what happened!), sadly though it was because I ended up with an infected throat as well as a build up of blood behind my left ear drum. I went to my GP first becasue I figured the returning throat pain was more likely to be a cold issue (especially as K missed school that day because he had a sore throat and cold) and didn't want to bother my specialist. When I called and explained what was going on the receptionist told me to get to the office asap to get it looked at. My GP ended up giving me a new anti-biotic (Biaxen - I never want to take it again!!!) and we breifly talked. I asked if I could get a blood requeistion form done up so we could have the results during a follow-up appointment. He asked why and I told him what the internist and rheumy said about the autoimmune and he just shock his head and said that they were not a fluke and that there was definitly something auto-immune going on, he just does not know what it is. He wrote up for a lot more tests than last time, any test that could point to autoimmune. Personally I am thinking it may be one of three - Sjogrens, Rheumatoid Arthritis or Lupus. I don't know what would actually happen if / when I am diagnosed as the medications for the auto-immune and what I need to take for the EDS don't seem to mesh well. My GP did write to send copies of the lab work to the rheumy I saw and I just said that I wouldn't be going back to him but he wanted to keep him in the loop. As I felt like crap and knew that we were going to discuss it at the next appointment I just let it slide. As of now I have one dose of anti-biotics left and have to go and get the bloodwork done tomorrow becasue my appointment with my GP is for the 13th. As a side note - I have not contacted my gastro / internist / cardiologist yet regarding the scope. Going to get the reports from her from my GP and go from there.
Secondly, why I haven't posted since the scope. Thankfully my dentist appointment got cancelled (wasn't looking foward to someone working with stuff in my mouth after what happened!), sadly though it was because I ended up with an infected throat as well as a build up of blood behind my left ear drum. I went to my GP first becasue I figured the returning throat pain was more likely to be a cold issue (especially as K missed school that day because he had a sore throat and cold) and didn't want to bother my specialist. When I called and explained what was going on the receptionist told me to get to the office asap to get it looked at. My GP ended up giving me a new anti-biotic (Biaxen - I never want to take it again!!!) and we breifly talked. I asked if I could get a blood requeistion form done up so we could have the results during a follow-up appointment. He asked why and I told him what the internist and rheumy said about the autoimmune and he just shock his head and said that they were not a fluke and that there was definitly something auto-immune going on, he just does not know what it is. He wrote up for a lot more tests than last time, any test that could point to autoimmune. Personally I am thinking it may be one of three - Sjogrens, Rheumatoid Arthritis or Lupus. I don't know what would actually happen if / when I am diagnosed as the medications for the auto-immune and what I need to take for the EDS don't seem to mesh well. My GP did write to send copies of the lab work to the rheumy I saw and I just said that I wouldn't be going back to him but he wanted to keep him in the loop. As I felt like crap and knew that we were going to discuss it at the next appointment I just let it slide. As of now I have one dose of anti-biotics left and have to go and get the bloodwork done tomorrow becasue my appointment with my GP is for the 13th. As a side note - I have not contacted my gastro / internist / cardiologist yet regarding the scope. Going to get the reports from her from my GP and go from there.
Sunday, January 1, 2012
Explaining my absence
Well, another period of time has passed without an update and I am very sorry. Figured I should explain what is going on. I have been having more and more shoulder pain since this summer and had to move my laptop from my downstairs bedroom (with a couch that is not shoulder friendly) to the upstairs living room (which is shoulder friendly, and back and leg and ... ). No one in my family knows about this blog so I don't want to update it or write any entry while they are around. Plus I have been more and more fatigued lately so am not staying up much past when my parents and nephew head of to bed. Also there are the normal (for EDSers) issues of my fingers and wrists being more painfull and stiff and what not during these cold winter months and the fact that my shoulder is deteriorating. I still have posts that I want to write, its just finding the time to write those when no one is up (or around) and my shoulder isn't behaving too badly.
Hope everyone had a great new years and here's hoping that 2012 is better for all of us EDSers!!
Hope everyone had a great new years and here's hoping that 2012 is better for all of us EDSers!!
Tuesday, August 30, 2011
Replies to Comments - Em
Well, for some reason I can not post replies to any comments on this blog. I know a few people had this problem a while ago and if they can let me know what they did to fix it I would be very very happy :D So, since I can not post the replies directly to the comments, I will post them here. Both comments are from Em so here are the replies:
Reply to: "Starting to Get Depressed"
AAAHHH I feel horible! For some reason I didn't get an e-mail telling me that you left this comment! I would have responded a lot earlier if I had of!!!
There are sites to get looking for doctors, I know a few of them and actually got the name of the geneticist who diagnosed me off of one (but I had to travel 4+ hours for it). The problem right now is that my parents are getting just as frustrated with doctors and my care as I am. They get their hopes up that a new doctor might be able to 'fix' me but when nothing happens they don't get to be upset about it becasue I get upset about it and they are trying to cheer me up. (I know I am VERY lucky to have two supportive and caring parents!). So after years and years of doctors (I have had bad health my entire life basically) and having literally only 2 out of like 20 doctors help me, they just don't want to have to travel the 4+ hours to get to the next biggest city.
The county I live in (about 5 towns) has a population of 15,000. The city closest to us has 70,000 and we have to travel 1.5 hours to a city with a teaching hospital that we have already seemed to 'outgrow' the departments that I need. So the next two biggest cities are "H" that is about 3.5 hours away (but has the added benefit of having family about 1 hour away) or "T" which is about 4.5 hours away (again though we have family about an hour away). However, my dad is also 'medically retired' and has had his neck fused twice and has a bad back and shoulders and he is the one that would have to do all the driving so it's hard on him too.
I did actually find one piece of info that might actually be good news. However, I need to talk to my GP about if he feels I do have lupus on top of EDS before I start that journey. It is a rheumy clinic in the town 1.5 hours away but that just might be able to help and has a bonus of NOT being attached to the teaching hospital (have had a few 'divisions' of the hospital tell me nothing can be done).
Wow sorry for the long comment! I still have to reply to your other one too! However, you did give me a good idea for a blog post as I realized I have never posted how I went about getting diagnosed in the first place!
Okay I promise the next reply won't be as long!! Was just trying to explain the problems of living in small town's and having to do so much traveling to even get to see a doctor that might be able to help.
Reply to: "Things Going Pretty Well"
I did get your reply the night before the test luckily so didn't stress too much about the liquid. It was horrible but I was able to get it down at least. Apparently I ended up having a Barium Swallow as well as a Barium Meal as I had to do a lot more than you did, including the table going from vertical to horizontal and back to vertical. I thought I was just having the Barium Swallow (no table movement) but got everything done by the sounds of it. Not much to say here as you can read what happened here. I am slightly worried however as I am not sure that I am 'eliminating' it properly as last night (a week from the test) was the first time I noticed any changes and ended up with a fair deal more blood than normal. I know TMI right lol
Well that is it, will be posting a new post today or tomorrow to go over a few things. And again, if you know how to fix the comments issue please let me know!
Reply to: "Starting to Get Depressed"
AAAHHH I feel horible! For some reason I didn't get an e-mail telling me that you left this comment! I would have responded a lot earlier if I had of!!!
There are sites to get looking for doctors, I know a few of them and actually got the name of the geneticist who diagnosed me off of one (but I had to travel 4+ hours for it). The problem right now is that my parents are getting just as frustrated with doctors and my care as I am. They get their hopes up that a new doctor might be able to 'fix' me but when nothing happens they don't get to be upset about it becasue I get upset about it and they are trying to cheer me up. (I know I am VERY lucky to have two supportive and caring parents!). So after years and years of doctors (I have had bad health my entire life basically) and having literally only 2 out of like 20 doctors help me, they just don't want to have to travel the 4+ hours to get to the next biggest city.
The county I live in (about 5 towns) has a population of 15,000. The city closest to us has 70,000 and we have to travel 1.5 hours to a city with a teaching hospital that we have already seemed to 'outgrow' the departments that I need. So the next two biggest cities are "H" that is about 3.5 hours away (but has the added benefit of having family about 1 hour away) or "T" which is about 4.5 hours away (again though we have family about an hour away). However, my dad is also 'medically retired' and has had his neck fused twice and has a bad back and shoulders and he is the one that would have to do all the driving so it's hard on him too.
I did actually find one piece of info that might actually be good news. However, I need to talk to my GP about if he feels I do have lupus on top of EDS before I start that journey. It is a rheumy clinic in the town 1.5 hours away but that just might be able to help and has a bonus of NOT being attached to the teaching hospital (have had a few 'divisions' of the hospital tell me nothing can be done).
Wow sorry for the long comment! I still have to reply to your other one too! However, you did give me a good idea for a blog post as I realized I have never posted how I went about getting diagnosed in the first place!
Okay I promise the next reply won't be as long!! Was just trying to explain the problems of living in small town's and having to do so much traveling to even get to see a doctor that might be able to help.
Reply to: "Things Going Pretty Well"
I did get your reply the night before the test luckily so didn't stress too much about the liquid. It was horrible but I was able to get it down at least. Apparently I ended up having a Barium Swallow as well as a Barium Meal as I had to do a lot more than you did, including the table going from vertical to horizontal and back to vertical. I thought I was just having the Barium Swallow (no table movement) but got everything done by the sounds of it. Not much to say here as you can read what happened here. I am slightly worried however as I am not sure that I am 'eliminating' it properly as last night (a week from the test) was the first time I noticed any changes and ended up with a fair deal more blood than normal. I know TMI right lol
Well that is it, will be posting a new post today or tomorrow to go over a few things. And again, if you know how to fix the comments issue please let me know!
Friday, June 24, 2011
Updates are done - as well as a new update lol
Well I have finally got all the posts up that I needed to do (I think I did at least) and believe I am now caught up. For those of you who have been trying to follow this but got confused I apologize. I had a lot of different topics that I wanted to blog about, if only so I have it as a 'record' for myself and to also try to explain why I have been quiet for so long. So, I wrote seven posts over the last few days to update on all that has been going on. I will list those seven along with a link to get to that post, and they will then be in order as I did not write them in any particular order. Here they go:
My nephews doctor's appointment regarding learning difficulties and how we can help him
My own doctor's appointment with my GP and what we learned and decided to do
The report that my internist / cardiologist wrote up and sent to my GP (who then gave it to me)
A great K moment, by his amazingly proud Auntie (Note: We got his grade back and he got a B+!!!)
K's 9.5th Birthday Party
An unsettling conversation with my brother
Reply from a letter that I send to a very informed EDS trained Doctor
And those are the entries that took me forever to finally finish but I believe each one of those entries are important and needed me to tell about for some reason or another. Now on to the current update :)
The increasing of the elavil is kicking my butt! When I started on it years ago most doctor's were shocked as it did not make me tired at all and did not contribute to a good sleep. Apparently I fell into the 5% of people who do not get tired from it. Well adding this itty bitty little bit extra (I was on 100mg, now up to 110mg) is making be absolutly exhausted! All I want to do is sleep, I can sleep for 12 hours a night and be ready for a nap just two hours after I wake up! I do know however that when I started this medication my health and body were not as badly affected by the EDS where nows there has been a lot of changes. It has only been a week and I know I have to give it plenty of time for my body to adjust to it so going to give it another week at minimum, probably more like a full month before I decide anything. I just want these headaches gone!!
Been having more and more joint issues. My right shoulder has been really acting up lately. I went back to taking the neurontin twice a day instead of once a day as the burning nerve pain was getting way out of hand. Unfortunatly the increase hasn't seemed to help too much. I now basically have that burning pain 24/7. I am honestly a little nervous putting ice or heat on it as I am not sure how good the skin is there and I don't want to end up doing more damage than there already is. Add to this I am now also getting basic pain. If I try to reach in front of me to get something (like sitting on my couch and reaching forward to get a drink) I get a horrible stabbing pain right into my back that sends enough of a jolt through me that I have already been modifying stuff to stop this even though it's not been that long. And then add the basic 'tired' feeling and you have a really great shoulder pain trifecta!
My hip is also causing issues. Last night I went to bed and read for a while. When I tried to roll over to turn the light out I got a shooting pain into my hip area that took my breath away. I then noticed that the way I was laying, my left foot was in the position that the entire arch side was right on the bed so I had my entire leg turned a little over quarter of the way in. I finally managed to get the leg to go straight only to find that I could now no longer bend my leg. It got to the point that I almost called my mom upstairs to come down to help me. However, after a dose of advil and breakthrough meds as well as the warm waterbed and me gently massaging the area and I could move again. It is defintly not something I want to experience again that is for sure!!!!
As I mentioned in one of the posts, I only noticed tonight that I have a positive ANA factor on my recent round of bloodwork. I had mistakenly thought that the 'Postive' was part of the C-Reactive Protein test until I looked further. At this point I honestly don't know what to think. Going to google for a while and let it sink in and will post soon about where I am at and what my plans for the future, medically at least, are.
My nephews doctor's appointment regarding learning difficulties and how we can help him
My own doctor's appointment with my GP and what we learned and decided to do
The report that my internist / cardiologist wrote up and sent to my GP (who then gave it to me)
A great K moment, by his amazingly proud Auntie (Note: We got his grade back and he got a B+!!!)
K's 9.5th Birthday Party
An unsettling conversation with my brother
Reply from a letter that I send to a very informed EDS trained Doctor
And those are the entries that took me forever to finally finish but I believe each one of those entries are important and needed me to tell about for some reason or another. Now on to the current update :)
The increasing of the elavil is kicking my butt! When I started on it years ago most doctor's were shocked as it did not make me tired at all and did not contribute to a good sleep. Apparently I fell into the 5% of people who do not get tired from it. Well adding this itty bitty little bit extra (I was on 100mg, now up to 110mg) is making be absolutly exhausted! All I want to do is sleep, I can sleep for 12 hours a night and be ready for a nap just two hours after I wake up! I do know however that when I started this medication my health and body were not as badly affected by the EDS where nows there has been a lot of changes. It has only been a week and I know I have to give it plenty of time for my body to adjust to it so going to give it another week at minimum, probably more like a full month before I decide anything. I just want these headaches gone!!
Been having more and more joint issues. My right shoulder has been really acting up lately. I went back to taking the neurontin twice a day instead of once a day as the burning nerve pain was getting way out of hand. Unfortunatly the increase hasn't seemed to help too much. I now basically have that burning pain 24/7. I am honestly a little nervous putting ice or heat on it as I am not sure how good the skin is there and I don't want to end up doing more damage than there already is. Add to this I am now also getting basic pain. If I try to reach in front of me to get something (like sitting on my couch and reaching forward to get a drink) I get a horrible stabbing pain right into my back that sends enough of a jolt through me that I have already been modifying stuff to stop this even though it's not been that long. And then add the basic 'tired' feeling and you have a really great shoulder pain trifecta!
My hip is also causing issues. Last night I went to bed and read for a while. When I tried to roll over to turn the light out I got a shooting pain into my hip area that took my breath away. I then noticed that the way I was laying, my left foot was in the position that the entire arch side was right on the bed so I had my entire leg turned a little over quarter of the way in. I finally managed to get the leg to go straight only to find that I could now no longer bend my leg. It got to the point that I almost called my mom upstairs to come down to help me. However, after a dose of advil and breakthrough meds as well as the warm waterbed and me gently massaging the area and I could move again. It is defintly not something I want to experience again that is for sure!!!!
As I mentioned in one of the posts, I only noticed tonight that I have a positive ANA factor on my recent round of bloodwork. I had mistakenly thought that the 'Postive' was part of the C-Reactive Protein test until I looked further. At this point I honestly don't know what to think. Going to google for a while and let it sink in and will post soon about where I am at and what my plans for the future, medically at least, are.
Sunday, June 19, 2011
LONG over due update!
I was realizing today that I have not updated this blog in a very long time. A few things medically have happened (dr's appointment and getting reports from specialists) and even more non-medical (nephews birthday party, conversating with brother, nephews dr appointment) things have occured. Instead of just posting a pile of updates that will have the date stamp of a few days among them, I have decided that I will back date the entries to the day that they acctually occured. I will then post in this post the links to those entries so things don't get too confusing (hopefully). Will start the updates tonight and will probably take a day or two to finish them all. So basically, until there are a lot of links in this entry, I would just wait until I post those links before reading entries.
Saturday, May 7, 2011
Post coming
Just wanted to apologize for not having an update yet about how my appointment with my cardiologist / internist went. I have most of it written up but am having a problem finishing it off as it really upset me and I am trying to figure the best way to write it up and get it out there. Should be up tomorrow or monday (as I have to go to my knee appointment on tuesday!)
Friday, March 18, 2011
Blog Changes
Blog Stuff
- Well I changed the font type and size on this blog. I am trying to find a way to make the links stand out better as well as I noticed they don't really 'pop' out at you if your reading the blog.
- Still wondering if anyone has any ideas as to where I should put my blog roll. Or other links for that matter. I think I will make another 'page' for normal links but not sure if I should put blog ones there.
- I updated my "Disorders" page, added another condition as well as some links in the other sections.
- If you have any suggestions as to what works or doesn't work or about anything you would like me to answer or include on here, please just leave me a comment on this post :)
Monday, February 28, 2011
Blog Layout
I am going to do a blog roll of other EDSer blogs but just not sure where I want it placed.
I am thinking of either down the left side or create a seperate 'page' for it so it's in the tabs at the top.
If anyone has suggestions or comments in general about the layour or colours let me know!
I am thinking of either down the left side or create a seperate 'page' for it so it's in the tabs at the top.
If anyone has suggestions or comments in general about the layour or colours let me know!
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