Tuesday, December 21, 2010

Osteoarthritis Study - Update

Well I guess that should say "OA Study - Rejected".  As I thought, this study was for people that were between 40 and 80 years of age.  What annoys me is that I talked to 'L' to set up the study, talked to the office twice (to ask for L and when the appoointment had to be cancelled becasue of bad weather), talked to L again to reschedule the appointment and then she called again yesterday.  She says that she was just wondering because I sounded really young on the phone, she wondered how old I was.  I told her I would be 29 in a week and she goes 'Oh, well this is for people over 40, I thought [rheumy] knew about that.  You don't need to come in now as we can't do anything for you'.

Well that just sucks.  I had a feeling that this is how it was going to turn out but I am getting really sick of things not working out.  My rheumy had hoped that this study would help my over all pain levels and help my joints.  Now we are basically working on nothing.  I am on pain killers and that is about it for treatment.  My left wrist is I fear beyond saving at this point.  He has already said that I have carpel tunnel and probably nerve involvment up my arm and that it is very unstable.  That's it on the wrist.  The shoulder he wanted me to wear a neck collar for a few weeks to rule out that it isnt a neck issue. Well I can't keep the collar on as it hurts and casues muscle spasms in my entire upper body.  So nothing going on with the shoulder either.  The left ankle and right knee have been xrayed and MRIed with nothing major showing up so nothing is happening with those joints either.  Then the hips are getting really bad but as I have so many other joints in 'limbo' I dont want to bring up any more.  I am just getting so frustrated!!  I hear about others that are going to surgery, doing this treatment, trying this medication, using this brace etc and I am stuck doing nothing.  I love my rheumy and he tries his best but I just want something done.  At this point if a surgeon walked in and said he could do an operation on my [left ankle, right knee, left wrist, hips, right shoulder] that had a 50-50 chance of making it better, I would jump at the chance.  I just can not sit here at almost 29 and be told that there is nothing that can be done.  I dont want to live this way for the rest of my life, I want at least something tried.  I dont care if it doesnt work, at least something would have been tried and who knows, might make things better.  I am also in limbo about the autonomic issues stuck between dr's and specialist that dont know what to do.  I just want something done!!!!

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