I saw someone else's blog where they broke down the appointments and tests that they had done last year. I got the calendar out and decided to go through it. Here are my dates:
January 28th - Internist Visit - Starting on the journey to figure out the sweating issues
February 5th - Full Pulmonary Function Test (Results showed normal values)
February 12th - Part One of full blood work done (Results showed normal values)
February 14th - First 24 hour Urine Collection (Results showed normal values)
February 15th - Second 24 hour Urine Collection (Results showed normal values)
February 16th - Part Two of full blood work done (Results showed normal values)
February 18th - Rheumatologist visit - Cortisone Injection Done
February 26th - Internist visit - Reviewed current tests, more tests scheduled
March 8th - Bone Scan done (Results showed changes in wrists and shoulder)
March 15th - 24 hour Holter Monitor Done (Results showed minor issues, not associated with sweats)
March 16th - Family Doctor Visit - Antibiotics perscribed
March 29th - MRI of right shoulder done
April 9th - Rheumatologist visit - Review of MRI, referal to Orthopedic Surgeon
June 2nd - Bloodwork done for Cardiologist appointment
June 16th - Cardiologist visit (reduce beta blockers, very upset by treatment, orders more bloodwork)
July 2nd - Rheumatologist visit (talk about conference, get meds ready for summer)
July 15th - 18th - EDNF Conference in Baltimore
Jully 16th - Consult with another Internist - Autonomic Dysfunction confirmed, meds suggested
August 5th - Rheumatologist Visit - Talk about Conference, orders DEXA, perrscribes nerve pain med
August 12th - Orthopedic Surgeon Visit - Decides it's a neck problem, not shoulder
August 24th - Internist Visit - Agrees with info from Conference, agrees to be cardio, orders MRI
September 2nd - DEXA Scan (Results show Osteoporosis)
September 7th - Optomitrist Visit - Persscription glasses changed, slight pressure elevation
September 14th - Family Doctor Visit - Confirms Osteoporosis, orders med for Dysautonomia
September 16th - Rheumatologist Visist - Medication renewal
September 19th - Head and Neck MRI
September 21st - Spine and Neck X-rays
September 26th - First dose of osteopososis medication
October 21st - Emergency Visit to Rheumatologist - Bad wrist dislocation, possible fracture
October 21st - XRays of Left Wrist (Results show no fracture)
November 9th - Neurologist Visit - Autonomic Issues Confirmed, Herniation not surgical, med suggested
December 2nd - Rheumatologist Visit - Pain meds changed, Ring Splints Rxed, Suggested Study Participant
December 16th - Family Doctor Visit - Perscribed antibiotics (lung, ear, throat, sinus infection)
18 Doctor Appointments
13 Different Tests Done
I was diagnosed with Osteoporosis, Autonomic Dysfunction, POTS, Bursitis in my Right Shoulder, Tendonitis in my Right Shoulder, and Nerve pain in my Right Shoulder.
I was started on three new medications for the Osteoporosis, Autonomic Issues and Nerve Pain. I also had medication levels altered on the heart medication and had my pain medications rotated.
Hi Stacy,
ReplyDeleteYour life really does sound a whole lot like mine! Thanks for the link-- I'm glad for these pages, as I think reading each other's experiences helps us feel a little less alone (and a little less crazy). -Erin M. (Romans818)
Yeah talking to and reading about other EDSers sure makes you feel more sane as it's not just you going through all the crazyness and frustrations. Thanks for checking me out :)
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